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MORECare Capacity stakeholder workshop, 3rd December 2012 (by invitation)
The workshop, held at the Cicely Saunders Institute on 3rd December 2012 brought together clinicians, researchers and expert patient advocates to form recommendations to determine how best to include individuals near to death in research on end-of-life care. The day was chaired by Professor Irene Higginson & Dr Catherine Evans from King’s College London and included 42 participants.
The aim of the day was to identify best practice in enabling those with compromised capacity to become involved in EoLC research with a particular focus on time, consent and research; proxies and supportive decision making; and ethics, resources and expertise. The research team would like to extend their thanks to all who participated in this insightful and thought provoking day with special thanks to speakers Professor Penney Lewis who presented on the legal framework and the Mental Capacity Act, Professor Matthew Hotopf who presented on the assessment of capacity and Dr Gareth Owen who presented on processes of consent in palliative and end-of-life care. To access the presentations please click on the titles above.
On 6th March 2012 at the CSI the first expert panel meeting for the MORECare Capacity project took place. The meeting focused on the systematic review, protocol revisions and online survey with helpful guidance offered towards the works next steps. The systematic literature appraisal is currently in process. During April 2012 a short survey will be sent out to capture ‘out of view’ data relating to the processes of consent with adults who lack capacity. If you have experience of conducting research with adults who lack capacity and would be interested to take part in a brief survey (5 questions), or have any information you wish to submit to the research team then please do not hesitate to contact us.