GUIDE_Care

Geographical and Temporal Variations in Place of Death in England (1984-2010): Understanding Trends and Associated Factors to Improve End-of-life Care (GUIDE_Care)

 

About the project

The GUIDE_Care project is a population-based study, set up to describe the variations in place of death and the factors that affect these in order to guide ways to improve the quality of care at the end-of-life.

 

The Office for National Statistics individual-level death registration data in England, for the period 1984 – 2010, was used for this project. Analyses focusing on different aspects in end-of-life care have been done on the data for all causes as well as for selected causes of death, and we are also carrying out and planning further detailed analysis on subpopulations.

 

We began work on the GUIDE_Care Children and Young People project in July 2013. The project will analyse patterns and changes to end of life care for children and young people, and provide recommendations for service providers and policy makers to help improve care.

 

GUIDE_Care Children & Young People project (Marie Curie Cancer Care, 01/07/13 – 30/06/14)

Investigators

Dr Gao Wei (KCL, PI), Professor Irene Higginson (KCL, co-PI), Professor Janet Peacock (KCL), Professor Anne Greenough (KCL), Dr Julia Verne (PHE Knowledge & Intelligence South West), Mr Myer Glickman (ONS), Mrs Carolyn Morris (user representative)

 

Researcher

Miss Joanna Davies (KCL, Research Assistant)

 

Project Advisory Group Members

Tony Bonser (user representative), Dr Shaheen Khan (Guy’s Hospital), Dr Jonathan Koffman (KCL), Dr Joanna Laddie (Consultant in Children’s Palliative Medicine), Katie Lindsay (National End of Life Care Intelligence Network, Public Health England), Roberta Lovick (user representative), Tariq Malik (PHE Knowledge & Intelligence South West), Dr Julie Messer (ONS), Andy Pring (PHE Knowledge & Intelligence South West)

 

 

GUIDE_Care (NIHR HS&DR, 01/04/11 – 30/04/13)

Investigators

Professor Irene Higginson (KCL, PI), Dr Gao Wei (KCL, co-PI), Dr Julia Verne (PHE Knowledge & Intelligence South West), Mr Myer Glickman (ONS), Ms Barbara Gomes(KCL)

 

Researcher

Mr Yuen King Ho (KCL, Research Assistant)

 

Project Advisory Group Members

Tony Bonser (user representative), Dr Shaheen Khan (Guy’s Hospital), Dr Jonathan Koffman (KCL), Katie Lindsay (National End of Life Care Intelligence Network), Roberta Lovick (user representative), Tariq Malik (PHE Knowledge & Intelligence South West), Dr Julie Messer (ONS), Andy Pring (PHE Knowledge & Intelligence South West), Stafford Scholes (user representative), Dr Katherine Sleeman (KCL)

 

Publications

Peer Reviewed Journal Articles:

Evans CJ, Ho YK, Daveson BA, Hall S, Higginson IJ on behalf of the GUIDE_Care project. Place and Cause of Death in Centenarians: A Population-Based Observational Study in England, 2001 to 2010. PLoS Med. 2014;11(6):e1001653

Gao W, Ho YK, Verne J, Glickman M, Higginson IJ; GUIDE_Care project. Changing patterns in place of cancer death in England: a population-based study. PLoS Med. 2013;10(3):e1001410

Koffman J, Ho YK, Davies JM, Gao W, Higginson IJ. Does ethnicity affect where people with cancer die? A population based 10 year study. PLoS One. 2014  April. (ECollection 2014 ahead of print).

Sleeman KE, Ho YK, Verne J, Gao W, Higginson IJ on behalf of the GUIDE_Care project. Reversal of English trend towards hospital death in dementia. A population-based study of place of death and associated individual and regional factors, 2001-2010. BMC Neurology. 2014; 14:59

Sleeman KE, Ho YK, Verne J, Glickman M, Silber E, Gao W, Higginson IJ; on behalf of the GUIDE_Care Project. Place of death, and its relation with underlying cause of death, in Parkinson's disease, motor neurone disease, and multiple sclerosis: A population-based study. Palliat Med. 2013; 27(9): 840-846

 

Conference Abstracts:

Koffman, J. Ho, YK. Davies, JM. Gao, W. Higginson, IJ. Does ethnicity affect where people with cancer die? A population-based 10 year study. HERON Conference: London. 14th May 2014.

Gao W, Ho YK, Verne J, Glickman M, Higginson IJ. Place Of Cancer Deaths In England, 2001-2010: Time Trends And Determinants. [abstract] Journal of Epidemiology Community Health 2012; 66(Suppl I):A27.

Ho YK, Gao W, Verne J, Glickman M, Higginson IJ. Where do cancer patients die? An 18-year trend in England. [abstract] http://conference.ncri.org.uk/abstracts/2012/abstracts/A170.html

 

Gao W, Ho YK, Verne J, Glickman M, Higginson IJ. Place of Death in Tuberculosis: an Analysis from Death Registry in England, 2001-2010. [abstract] https://www.hpa-events.org.uk/hpa/frontend/reg/absViewDocumentFE.csp?popup=1&documentID=4672&eventID=125

 

Gao W, Verne J, Glickman M, Higginson IJ. Place of death is associated with holiday periods: implication for end of life care. [abstract] http://www.congressinfo.org/filerun/weblinks/?id=e94550c93cd70fe748e6982b3439ad3b&filename=EAPC-Abstract-Book_FINAL%20Version_small.pdf

 

Evans CJ, Ho YK, Daveson B, Hall S, Higginson IJH, Gao, W. ‘Prolonged dwindling’; an over simplification of dying for centenarians? [abstract] http://www.congressinfo.org/filerun/weblinks/?id=e94550c93cd70fe748e6982b3439ad3b&filename=EAPC-Abstract-Book_FINAL%20Version_small.pdf

 

Sleeman K, Ho YK, Verne J, Gao W, Higginson IJ. Sociodemographic determinants of place of death in dementia: whole population cross-sectional analysis in England, 2001-10. [abstract] The Lancet 2012; 381(): S101.

 

Sleeman K, Ho YK, Verne J, Glickman M, Silber E, Gao W, Higginson IJ. Trends In Place Of Death, And The Effect Of Death Certificate Classification And Coding Changes, In Parkinsons Disease, Motor Neurone Disease, And Multiple Sclerosis In England: 1993–2010. [abstract] Journal of Neurology, Neurosurgery & Psychiatry 2012; 88(Suppl S2).

 

 

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