What is the study's aim?
identify, appraise & synthesise ‘best practice’ methods to evaluate palliative and EoL care
services, particularly focussing on complex service-delivery interventions and reconfigurations.
What are the objectives?
- To critically review the current methods used in evaluation research in EoL care considering the full range of issues
- Characterise the different care settings, organisational contexts, and patient groups where end-of-life research may be conducted and consider the implications of these for different methodological approaches
- Identify practical, ethical, legal and methodological issues pertinent to EoL care research
- Appraise the needs and views of key stakeholders, including policy-makers, research ethics committees, research funders and other regulators of research, health care professionals and patients, relatives and carers
- Evaluate potential solutions to barriers created by the issues identified
- Synthesise the findings of the review and stakeholder consultation to develop guidelines for undertaking evaluation research in EoL care
Why is this important?
evidence base for EoL care is currently limited. There are relatively few trials of
EoL care services or specific interventions (e.g. symptom support). EoL care evaluation
is subject to the general concerns of evaluating complex interventions, but
also poses additional challenges:
population group nearing the end of life
and specialist care providers
What will happen?
4 component design to identify best practice methods:
- Scoping systematic reviews on effectiveness evaluations in palliative and EoL care
- Literature appraisals, e.g. on issues of
- Web-based stakeholder consultation on best
- Expert ‘think-tank’ workshop on unresolved
How can I get involved?
with your expression of interest & participate as a stakeholder in the
consultation. Your contribution will help shape the Methods Guidance on
Developing and Evaluating Palliative and EoL Care
Please contact us with
your expression of interest